9/29: Learning, waiting, watching

"I made you and I will care for you"  - Isaiah 46:4

Here is my sweet little baby! He is so precious.  When we went in Tues morning they were taking him off the ventilator.  He looks very calm while resting and recovering from surgery.  We are really watching the spinal fluid and hydrocephalus.  If it does not appear to absorb itself Dr. Nagy will have to put in a shunt.  60-80% of SB needs them.  Dr. Nagy says it could take a day or two to know, or it could take weeks.  I am still praying we don't need one.  The bible verse above really says it all.  God is in control.  He will take care of our baby.  So many things have gone our way so far so I keep telling myself to hope for the best, but be prepared for it if it happens.  Toby's back looks better and better every time I see it.  He lays on his stomach and rests.  He had his first feeding today.  Right now we can't hold him so we turn him on his side and he lays there while eating.  The nurses are great and are working with Adam and I.  They are teaching us how to handle him and let us care for a lot of his needs ourselves.  We changed his diaper, took his temperature, doctored his umbilical chord, and fed him all on our own.  Around 6:00 we went and gave him his first bath.  He didn't get to have one yesterday.  He smells so good!  Adam and I are really working together.  It take both of us to feed him.  Can you imagine burping a baby laying on its side with a back injury?   Working as a team is really helping.  Dr. Nagy came in last night and looked at his head.  He predicts we will need a shunt, but it just might take awhile for the fluid to accumulate enough for us to know.  Please keep the situation in your prayers.  I am loving being a new mom.  It is hard of course but I have so much help and a good husband.  I'm dying to hold him of coarse, but I am still so thankful everything went good that I refuse to get upset about it.  We had a great day.  I pushed it a little bit so I stayed in all night.  Adam went down to the 2:00am feeding and he said Toby was doing great and eating great.  It has really not set in with me that the worst part of all of this is over.  I keep waiting for the bad news.  Thank you God for taking such good care of us!