By popular request...here are some pictures that have me in them. The top one is a family picture one of the nurses took for us. It hangs on Toby's bed. I love it! The second one is a picture of me holding Toby for the very first time. It is from when he was four days old. I think this picture is one of my happiest moments ever! When I see how bruised and red his back is here it is unbelievable. It looks so good now! They took the stitches out yesterday. Today is Toby's 14th day in the NICU. It is my 20th day here at the hospital. There is no doubt that I am tired, frustrated, ready to be home, and everything else. However, there is no QUIT with a baby in NICU, so we just keep going. The past few days have been a lot of waiting. Toby has the drain in his head and can't turn his head to the other side. I can't hold him for now, and that is of course hard too. He's sick of laying in one position for five days straight. The only thing that satisfies me is that I know he will not remember any of this. Besides his frustrations he is the sweetest baby. He loves his bottles and feeding times. He wiggles around and shows off his strength. He pretty much can stand up on his feet (ha ha I know that sounds impossible...but its true) I can't wait for you all to meet this special person! Toby's hydrocephalus is borderline between being controlled and needing a shunt. So this is why we have been waiting and observing. Today we monitored the Inter-Cranial Pressure and I think Dr. Nagy has finally decided to shunt him. Even though we would prefer not to have one...we are okay with this decision. We are still waiting to find out the exact plan and what time his surgery will be. The one thing we know is that it will be sometime tomorrow (mon). Waiting for surgery is terrible, and I think that is the worst part. I am trying not to think about it yet, but of course it weighs heavily on my mind. Please pray for us and Toby. I know he won't remember these days, but I feel so terrible that he has to go through everything he's dealing with. I think they will run antibiotics for 72 hours after surgery and then if he is doing good we should get to come home. I am hoping that by the end of this week we will be back. :) Pray for that too!
By popular request...here are some pictures that have me in them. The top one is a family picture one of the nurses took for us. It hangs on Toby's bed. I love it! The second one is a picture of me holding Toby for the very first time. It is from when he was four days old. I think this picture is one of my happiest moments ever! When I see how bruised and red his back is here it is unbelievable. It looks so good now! They took the stitches out yesterday. Today is Toby's 14th day in the NICU. It is my 20th day here at the hospital. There is no doubt that I am tired, frustrated, ready to be home, and everything else. However, there is no QUIT with a baby in NICU, so we just keep going. The past few days have been a lot of waiting. Toby has the drain in his head and can't turn his head to the other side. I can't hold him for now, and that is of course hard too. He's sick of laying in one position for five days straight. The only thing that satisfies me is that I know he will not remember any of this. Besides his frustrations he is the sweetest baby. He loves his bottles and feeding times. He wiggles around and shows off his strength. He pretty much can stand up on his feet (ha ha I know that sounds impossible...but its true) I can't wait for you all to meet this special person! Toby's hydrocephalus is borderline between being controlled and needing a shunt. So this is why we have been waiting and observing. Today we monitored the Inter-Cranial Pressure and I think Dr. Nagy has finally decided to shunt him. Even though we would prefer not to have one...we are okay with this decision. We are still waiting to find out the exact plan and what time his surgery will be. The one thing we know is that it will be sometime tomorrow (mon). Waiting for surgery is terrible, and I think that is the worst part. I am trying not to think about it yet, but of course it weighs heavily on my mind. Please pray for us and Toby. I know he won't remember these days, but I feel so terrible that he has to go through everything he's dealing with. I think they will run antibiotics for 72 hours after surgery and then if he is doing good we should get to come home. I am hoping that by the end of this week we will be back. :) Pray for that too!
I LOVE, LOVE, LOVE the pictures with you in them! Thanks for sharing your happiest one with us. You look like you are holding a piece of heaven in your arms, which of course you are. I wish I could wave a magic wand and make all of your worries disappear but since I can't, I will just continue to pray for you and your sweet family. We love you all so much.
ReplyDeleteLaura and Adam: You have been on my mind so much. I love the photos! Toby is a beautiful baby and I know you can't wait to get him home. Sending prayers your way.
ReplyDeleteks
Laura and Adam, I know you don't want Toby to have more surgery, but we are all so fortunate to have such great doctors to do these things. He is in such good hands. We will be praying for you all.
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